VITAL information to help parents and health professionals catch the early signs of a brain tumour in a child has been distributed to the island’s GP surgeries.
With the permission of the Department of Health and in partnership with the Royal College of Paediatrics and Child Health, the Samantha Dickson Brain Tumour Trust, the Children’s Brain Tumour Research Centre and the Health Foundation, Naseem’s Manx Brain Tumour Charity distributed the HeadSmart packs.
Each week in the UK, around 10 children or teenagers are diagnosed with a brain tumour.
No comparable figures are available in the Isle of Man but there is enough prevalence for Naseem’s Manx Brain Tumour Charity to believe getting as much information as possible out into the public domain is a key factor in acting quickly.
The aim of the HeadSmart campaign is to reduce the time it takes to diagnose children and young people with brain tumours by educating healthcare professionals and the public about the symptoms of brain tumours in children and young people.
Research has shown there is considerable variation in the time taken to diagnose childhood brain tumours.
Half of all children and young people diagnosed with a brain tumour take longer than three months to be diagnosed.
The aim of the HeadSmart campaign is to reduce the time taken to diagnose brain tumours so that half of all children and young people with a brain tumour are diagnosed within six weeks of developing symptoms or signs of a brain tumour.
Delays in the diagnosis pathway can occur at different stages and for different reasons, including delays in visiting a health professional, health professionals not recognising symptoms and delays in referrals.
HeadSmart aims to ensure these delays are dramatically reduced by providing quick and easy information families and health professionals can consult.
Naseem’s Manx Brain Tumour Charity was set up by Naseem Pishvaie, who died as a result of a brain tumour.
It is run by Naseem’s mum Gerry Pishvaie.
The charity aims to provide direction for sufferers on where to find financial support for their condition and information about brain tumours.
It also provides financial assistance to sufferers through a grant application process and supports research into brain tumours and forges links with other brain tumour charities in the UK.
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Thursday 23 May 2013
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